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Positive evaluation of the pilot project and future perspectives

In September 2017, KBDF launched a pilot project in new areas of the Tibetan Plateau : Sichuan and Qinghai provinces. Last December, the Belgian team realized a field visit to evaluate the implementation in both provinces and brought back very good news!

A few greenhouses were built in Sichuan and work very well despite harsh climatic conditions (-15°C at night). Now people can have fresh vegetable at 4,500 high during wintertime (unbelievable without greenhouse)! What an improvement for the daily diet of the children!

   

In Qinghai, the project was focused on hygiene and health promotion. Several training sessions were given and basic hygiene articles (basin, underwear, soap, etc.)) were distributed to the participants. KBDF team met some of them who expressed their enthusiasm and their willingness to have more activities like this!

     

The pilot project was then a good success for KBDF, who desires to continue to implement such activities in these areas. More details here!

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Closing of the project in T.A.R. and launch of a pilot project on the Tibetan Plateau

After the release of the new Chinese law about international NGO’s, we were constrained to close down our project in Tibet Autonomous Regions last June, after 25 years of work… Despite the incomprehension and the deception, the Belgian team decided to not give up and to continue its commitment towards the Tibetan population.

This is why these last months, we have designed a new project in close collaboration with new Tibetan partners. The first phase will be a trial on greenhouse construction, basic health and hygiene promotion, as well as training on nutrition. The project location will be Qinghai and Sichuan provinces and the implementation will start in September 2017.

For more info please visit our “Project” page.

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Running the 20km of Brussels for the "ones that can't"

25 fabulous people took the challenge to run the 20km of Brussels to support KBD Fund on Sunday 28^th of May!

In addition to the physical effort, they raised 4,000 euros for the KBD patients!

Congrats to these brave runners who all crossed the finishing line!

      

Thanks guys for this amazing challenge and effort! You are wonderful!

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KBD Fund at the BANFF Mountain Film Festival

The BANFF Mountain Film Festival is a festival of short films that stage intrepid persons in vertiginous setting.

For the 2017 edition, KBD Fund team was in Brussels for 2 nights (March 16^th-17^th) in order to present the organization and its project. The goal was to raise awareness among “mountain lovers” of what can be the living conditions of populations living on high plateaus.

Thank you to all the BANFF staff and volunteers! It was a great experience and hope we could repeat it next year!        

         

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Cooking class

In May, our fervent supporter Dominique decided to “renew the experience” after the success of the charity lunch in December. That’s why she organized two cooking classes whose profits have been entirely donated to KBDF.

 

Both events took place in the private kitchen of “la Rose Noire” in Hong Kong and gathered 15 participants.

Thanks to their generosity and Dominique’s dedication, HKD 11,000 HKD (€ 1,250) were given to KBDF and will be directly used to strengthen preventive measures in Tibetan villages.

        

 A big thank you to everyone!

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Charity Lunch

In December, our two big supporters in Hong-Kong, Dominique and Benedicte, made us an early Christmas gift. They organized a lunch in favour of KBD Fund.

With Benedicte as “master of ceremonies” and Dominique as chef, a group of 17 women had the chance to enjoy a delicious “Foie gras” lunch, as well as to discover our activities. A big success!!

       

                   

A big and warm thank you to Benedicte and Dominique and to every generous participant!

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Baroque music concert for KBDF

This year, The Baroque Music Festival in Famenne-Ardenne (Mubafa) offered to organize their first concert to support our organization. Belgian soloists (Julie Bailly, Marie-Catherine Baclin, Grégory Decerf …) will sing “English Baroque opera tunes”, accompanied by Ballo e Canto Ensemble and Terpsichore vocal Ensemble, and directed by Mr. Xavier Haag.

The Cultural House of Famenne-Ardenne (Marche-en-Famenne) will host this event October 9 at 20.00. Tickets are available here.

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Abstracts papers presented by KBDF team are available on the page "Boeken - Symposium - Publicaties"

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Rare Disease Day

28th of February 2015

This year was the 8th edition of the Rare Disease Day. KBD became a friend of this organization which fight to raise awareness of policy makers, public authorities, industry representatives, researchers, health professionals and anyone who has a genuine interest in rare diseases.

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On February 21 st, 2014, the 2 partners, the « Centre for Disease Control and Prevention (CDC)  » of the Tibet Autonomous Region and "Kashin-Beck Disease Fund" have signed a new agreement for 3 years. The signing ceremony took place in front of representative of the Regional Public Health Bureau and the Foreign Affairs Office of Tibet Autonomous Region.

Concert voor "Kashin-Beck Disease Fund"

Concert " De messias ", meesterwerk van Georg Friedrich Haendel,
Uitgelegd door het vocale ensemble " Terpsichore " en het orkest(band) van de Muses", begeleid door Xavier HAAG

                       

Last January 2011, Professor Georges Lognay, responsible of the Department of Analytical Chemistry of Liege University (Faculty GxABT of ULg) (Belgium) came for 10 days in Lhasa. His objective was to give a training session for the team of the laboratory for endemic diseases (CDC). Several lab experts from the laboratory of the epidemic diseases join this training. People enjoyed very much to have an expert with them. They asked to renew this experience.

On January, 21st, 2011, the two partners: the Center for Disease Control and Prevention (CDC) of Tibet Autonomous Region and the Kashin-Beck Disease Fund (KBDF), through their 2 directors, respectively Dr. Sheerop Rapten and Dr. Françoise Mathieu, have signed a new agreement of collaboration for the coming 2 years. Several health authorities from CDC and Regional Health Bureau as well as representatives of the Foreign Affairs Bureau attended the ceremony

  External evaluation of the programmes of Kashin-Beck Disease Fund

In December 2010, a committee of external experts made an evaluation of the programmes jointly implemented by the Center for Disease Control and Prevention and the Kashin-Beck Disease Fund. The evaluation included a field visit. The conclusions were positive and highlighted the benefit for the population, specially the children.

This evaluation was a necessary step for the eventual renewal of our agreement!

Last April 14th, 2010 a new earthquake has shacked a Western province of China: Qinghaï province. The magnitude was 7.1 on Richter scale. The Yushu County was one of the very badly affected areas.
On April 16, the reported number of deaths reached 791 and around 10,000 persons were heavily injured. Of course, a lot of houses collapsed and most of the people faced a lack of food and have no place where to sleep.

Our partner, the CDC of Tibet Autonomous Region, sent immediately a rescue team led by the Director.

Together with him, we decided to provide “tsampa” to 2 villages of Yushu county. The 2 administrative villages were Guoqing and Ganda villages. They included 22 natural villages populated with 700 households and 2447 people.

During 3 days, the KBDF team bought 7 tons of “tsampa” in Lhasa and on Sunday 25th, Mrs Yangzom from KBDF left for Yushu County with a big truck carrying all the tsampa.  As soon as she reached the place after a trip of 3 days, the CDC team helped her and together they distributed during 2 days the tsampa directly to all the people.

Actually we are still monitoring the situation.

This “small” help was again possible thanks to your support. We would like to sincerely thank you to have made that possible.

                  

Twee jonge "fundraisers" gekocht rotsen en verkocht ze van geld voor KBDF.

KBD - Prevention & Treatment - 25th of May 2009

On May 25th, 2009 the KBD Foundation together with her partner: the Centre for Disease Control and Prevention of Tibet Autonomous Region (T.A.R.) held a conference in Lhasa. Several persons of the Regional Health Bureau and the Foreign Affairs Bureau of T.A.R were attending the meeting.  

The objective of the conference was to present and to discuss the outcome of the 4 years project (including the research part).

The different topics were:
-  New KBD prevalence map of T.A.R.
-  Food consumption of children in KBD endemic rural areas of Central Tibet
-  Rickets in young children living in a KBD endemic area in Central Tibet
-  Effects of a combined micronutrient supplementation on Kashin-Beck disease in Tibet
-  Mycology results: 2004 - 2007
-  Future plan for prevention and treatment of KBD in T.A.R.

The main conclusion was that improvement of health and nutrition of children living in KBD endemic area remains a priority.

                                   

Op 6 Oktober 2008 trof een aardbeving met een kracht van 6.6 op de schaal van Richter het Zuid-Westen van de Autonome Regio van Tibet. Het epicentrum lag in het Damxung kanton dat zich ongeveer op 80 km van de hoofdstad Lhasa bevindt. De beving veroorzaakte ook schade in een deel van het Nyemo kanton, meerbepaald in de Shume vallei waar ons team reeds meer dan 15 jaar werkzaam is

Tien mensen overleefden de aardschok niet. Er waren 50 zwaargewonden die in openbare en militaire ziekenhuizen verzorgd werden.

Scholen en huizen waren ingestort of staan op instorten. Ongeveer 5000 mensen hebben de winter in tenten doorgebracht waarronder ook studenten die in een kostschool leven.

KBD Foundation hebben warme klederen en ondergoed aangekocht om de studenten van twee kostscholen te beschermen tegen de vrieskou.

Door uw financiële steun was deze actie mogelijk.

From Rotary Club of Shanghai- February 25, 2014 – Last Meeting’s Highlights - Speaker: Francoise Mathieu. Pagoda N°172– 25 Feb 2014 and Pagoda N°173 – 4 Mar 2014.

From Rotaract Club of Shanghai– February 24, 2014 -  Speaker: Francoise Mathieu.

From Rotary Club Shanghai – February 16, 2014 – Pagoda N°209 – Updated Report for Rotary Club of Shanghai

From Université de Liège - Gembloux Agro-Bio Tech. Newsletter : Septembre 20, 2013 - La maladie de Kashin-Beck au Tibet étudiée à Gembloux - by Coraline laurent

From  La Meuse - Luxembourg: Septembre, 17, 2012 -  Ils améliorent l'alimentation des Tibétains - by Nathalie Husquin

From Le Soir: February 16, 2011   -   "Et si vous adoptiez un village tibétain ?"  -   By: Eric Burgraff

From OSIRIS news : December 2010 > February 2011   -   L'HUDERF au Tibet    -   By: Marion Garteiser

From: the Royal Geographic Society of Hong Kong October 29, 2009   -   "From Gaza to Tibet"   -   By: Françoise Mathieu

From  CORRIERE DELLA SERA : June 21, 2009  -   lt Resta un mistero la malattia che svuota i villaggi cinesi   -   By: Franca Porciani   

From : 12 June 2009   -   lt A Medical Mystery in Middle China - Vol. 324. no. 5933, pp. 1378 – 1381 - DOI: 10.1126/science.324_1378     -    By : Richard Stone

From :  Oct 21, 2008    -   lt Rare disease haunts poor Tibet plateau villagers   -   By: Lucy Hornby

From: Le Petit Shanghaien, May 2008   -   La maladie des gros os. Action humanitaire au Tibet   -   By: Sylvie Liu et Véronique Sohier

From: Infimag, le Magazine de l’Infirmière francophone (T: 082 21 33 50), Mars 2008   -   Kashin-Beck Disease, Association, et Une infirmière au Tibet   -   By: Lili Dewitte

Belgian Newsletter – November 2007 – Novembre 2007   -   Rencontre avec Françoise Mathieu  Consulaat generaal van België te Shanghai   -    Consulat général de Belgique à Shanghaï

From : Shanghai Daily, June 25th, 2007   -   Foundation fighting KBD in China  -   By: Lorna Chiu

From: McClatchy Newspaper, May 21st, 2007   -   Mysteious illness haunts Tibetan highlands   -   By: Tim Johnson

From : Frankfurter Rundschau, April 28th, 2007   -   Krankheit der armen - Sie sind kleinwüchsig, haben ständig Schmerzen – Zehntausende Tibeter leiden unter der rätselhaften „Großen Knochenkrankheit“.   -   By : Harald Maass

From: Les Editions de l'Avenir (Vers l'Avenir; l'Avenir du Luxembourg; Le Jour; le Courrier de l'Escaut; le Courrier), Thursday 2nd November, 2006 (N°255)   -   Humanitaires belges au Tibet. L’énigme de la maladie des gros os   -   By : René Smeets

Harbin Medical University (Heilongjiang province): news December 12th, 2005   -   Project Director of Belgian Kashin-Beck Disease (Control) Foundation - visit the Center for Endemic Disease Control   -   By: Zhang Xufeng

From: Le Journal du Médecin, Tuesday 30th August, 2005 (N°1691)   -   Le Tibet, les gros os et les champignons   -   By: Dr. Claude BIEVA

From: Taipei Times, September 30th, 2003   -   A "disease of poverty" strikes Tibet's villages

From: New York Times, September 29th, 2003  -   Stunted by Illness, Tibetan Villagers Ponder Flight   -   By: Jim YARDLEY

From: Médecins Sans Frontières   -   International Activity Report 2002. China, Tibet   -   MSF-USA: 2002 Activity Report - China –

From: Médecins Sans Frontières   -   International Activity Report 2001. China, Tibet.   -   MSF-USA: 2001 Activity Report - China -

From: Food Research Institute FRI Newsletter Fall, September 4th 2001, Vol. 13, No. 3   -   World literature: Kashin-Beck Disease: Mycotoxins and Selenium   -   By: Ellin DOYLE

From: British Medical Journal, February 20th, 1999   -   Beijing conference reviews Kashin-Beck disease    -   By: Richard TOMLINSON